In what has been billed as the world’s largest community genetics study, Barts NHS Trust in East London and the medical charity the Wellcome Trust, is to spend millions on surveying Muslims in East London to find out why genetic diseases are so common in this community. In a Press Release dated 13th March 2015, Barts NHS trust said:
“East London Genes & Health, the world’s largest community based genetics study, has launched today – aiming to improve health among people of Pakistani and Bangladeshi heritage in East London by analysing the genes and health of 100,000 local people.
Led by Queen Mary University of London (QMUL) and supported by £4m in funding from the Wellcome Trust and MRC, researchers will study the genetic code and medical records of local South Asian people – with the aim of improving understanding of the links between genes and environmental factors in causing disease. These findings will then contribute to improving healthcare and the long-term prevention and treatment of a number of diseases particularly affecting local communities and the wider population, such as heart disease and diabetes.
Following enrolment of 46 local individuals – including healthcare professionals, faith leaders and local council members – QMUL in partnership with Barts Health NHS Trust and local charity Social Action for Health will now begin recruiting participants aged 16 and over from Tower Hamlets, Waltham Forest, Newham and beyond. The study is open to adults with and without health problems who regard themselves as of Bangladeshi, British-Bangladeshi, Pakistani or British-Pakistani origin.”
There are many people in this geographical area who are not of the origins targeted in the study who would probably prefer this money to be spent in more useful ways. Life for non-Muslims in this area and who need healthcare or social care is really not good. Housebound British people have to virtually beg to be seen by a district nurse and my contacts tell me that it is a constant battle for carers of British people in this healthcare trust area to get proper treatment for their relatives. I have been told of individuals who have to sit in the hospital constantly as much as they can, just to make sure that their relatives are not being mistreated, and are being given correct medical treatment.
It’s difficult not to consider this project an utter and complete waste of money and these millions could and should be spent improving the healthcare for everybody and not just those who mostly represent the religion of special needs.
The Press Release from the Trust continued:
“East London boroughs, and Pakistani and Bangladeshi communities in particular, have some of the highest rates of poor health in the UK. For example:
• Pakistani men have the highest rate of heart disease in the UK and the risk of dying early from heart disease is twice as high among South Asian groups compared with the general population.
• People from South Asian communities are five times more likely to have type 2 diabetes than the general population.
• Tower Hamlets and Newham have the lowest life expectancy of all London boroughs.
Professor David van Heel, who is co-leading the study at Queen Mary University of London, comments: “East London Genes & Health is entirely focussed on improving local health. Not only do South Asian people have some of the highest rates of poor health in the UK, they are also markedly under-represented in medical research and therefore not likely to benefit from the advances in genetics which are shaping the future of medicine. We aim to change this and we need local support to make it happen.
“By recruiting 100,000 people from the local community, we are giving East London people the opportunity to play a key role in improving the health of future generations, including enhancing our understanding of why certain people get diseases and the development of improved treatment and prevention.”
This is a huge and expensive proposition being undertaken by the University and the NHS Trust and a sample size of 100,000 appears huge. Just considering how much it will cost to administer the project and track and examine samples would probably make most people’s eyes water let alone the costs of expensively produced publicity materials that are being put up in hospitals and other healthcare settings in the Trust’s area.
I’ve just done a quick calculation and this £4 million pounds could pay for a years salary for140 nurses or healthcare workers each earning £28k per annum. This figure doesn’t take into account what the health trust and the University is spending on this project, only what the Wellcome Trust is putting in. The amount of money that will be wasted on pandering to Muslims in East London could be considerably higher as this project is likely to last until 2034, with the initial stage being the hiring of 100k participants, and the rest of the time analysing the data.
You don’t need to be an Einstein to know where a lot of the healthcare problems afflicting Muslims are down to the fact that Muslims refuse to abandon dangerous genetic practices such as first cousin marriage. In fact the health trust even admits in its own press release that consanguinity among Muslims is an issue.
The Press Release continued:
“The East London Genes & Health study will work in two stages. Stage one, taking place over the next four years, will focus on recruiting 100,000 participants. Stage two, running until 2034, will focus on utilising the data gathered to support various local, national and international medical research, including recall of certain participants for further studies. The study aims to increase our understanding of the following:
• Drug response: why do people of certain ethnicities suffer severe adverse drug reactions, and is there an underlying genetic cause?
• Diabetes: looking into how people respond to treatments and whether rare types should be treated differently.
• Heart disease: studying genes among people with very high or very low cholesterol, to better understand why heart disease and strokes occur.
• Genetic variation: how do genes vary from person to person in the adult Pakistani and Bangladeshi communities, what is ‘normal’?
• Knock-out genes: when a healthy person has two copies (inherited from both parents) of a gene that functions differently to the norm, and how this information can be used to influence medicine and the development of new treatments.
East London Genes & Health is different to other genetic sequencing studies because of its focus on two distinct UK ethnic minority groups – with a unique range of genetic variation and high levels of health deprivation – and access to local electronic NHS health records.
The study of genetic variation is crucial in helping us better understand the ‘normal’ variation in Bangladeshi and Pakistani genes, which will then help the diagnosis of inherited rare diseases. In addition, the team will study knock-out genes in order to better understand how they impact health in a positive way (such as lowering cholesterol) with the hope of eventually developing drugs or treatments which block ‘bad’ genes and enhance ‘good’ ones. Knock-out genes are rare in the general population but the chances of carrying one is increased when a person’s parents are related, as is more common among Pakistani and Bangladeshi communities.
Pay attention to the last part of that excerpt where they admit that cousin marriage is a problem. There is virtually no need to waste such huge sums of money on a study like this when the solution to the problem is obvious and has been for many years. The solution is for Muslims not to breed with their first cousins. Other communities who have a smaller gene pool, such as Ashkenazi Jews, have dug into their own pockets to deal with genetic diseases affecting their community and have run campaigns to alert those at risk of genetic dangers. They have often, of their own initiative, taken immediate steps to stop these diseases by examining their own genetic heritage.
We are not seeing such positive behaviour or a recognition that here is a problem that needs to be dealt with from the Muslims of East London. They just carry on shagging their first cousins, which produces horrifically physically and mentally damaged children, and expecting the rest of us to pay for their walking or wheeling expensive DNA disasters.
I can’t help feeling that the money being spent on this project could have been spent better elsewhere and Barts NHS Trust and all those other organisations involved should be ashamed of themselves for using public and charity money in this way. Spending money on Muslims who are too thick or obstinate to get to grips with the idea that it’s not good to breed with your first cousins for generation after generation, is in my view disgusting. It’s not a genetic study that is needed here it is the authorities putting pressure on Muslims to change their disgusting and dangerous marital practices.
I know some people who get care from the healthcare organisations that come under the Barts NHS Trust umbrella, and judging by their experience, I wouldn’t want to be treated by them, and I wouldn’t want my wife or child treated by them either.
Money that has been given to healthcare charities and money from taxation should not be spent in this way, it really should not. I’ve worked for the public sector in the past and I’ve been aware of money being wasted on guff (first class air travel for senior staff etc) but this profligacy by Barts NHS Trust and others, must count as among the the worst I’ve ever seen.
Original Press Release from Barts NHS Trust